The Road Goes Ever On and On

My hobbit passed away this morning.  He made my life better and I hope I made his life better too.  Thank you for all your support for us and our struggles.  I know he is out there trying out his brand new eyes and ears and I honestly can’t wait to join him on that forever journey to the Gray Havens.

Regarding Hobbits…

My hobbit was recently in the hospital.  That’s why no updates for so long.  He had pancreatitus and was in for an entire week.  I also started a new, well paying,  job downtown.  Taking the bus everyday, I didn’t have a car to rush home and help him, so he called an ambulance.  It’s a short, muddled, painful story about how to cope with disabilities and still manage a relatively stable home life where everyone feels safe–that help will come in time.

The hobbit is feeling better, but there do appear to be some after effects, and maybe some side effects.  We are continuing to follow up with the doctor.

We are looking into a service dog for the blind as well.  I just wanted to give you an update and let you know that we’re fine.  We’re all fine here.  How are you?

If you’d prefer something about a dwarf, check out my latest post on my personal blog.

All arayed in spotless white…

Feel incredibly depressed today, but I also feel like I don’t have a right to be depressed.

A good friend passed away this week.  I knew there was trouble because I hadn’t heard from his wife in a while (with a personal contact).  His wife was essentially my mentor in ASL.  She is a professional interpreter who corrected me, taught me and helped me through my trials in the Deaf Community and with the problems of having a deaf spouse brings into a family.  I generally know enough now that I have been on my own in most cases regarding ASL, but when it came to family problems, she and her husband, who just passed, were always there to help us through them.

Before this friend passed away, he had been through a coma/stroke that affected his brain.  He almost died.  It was remarkable that he pulled through it.  The Deaf Branch prayed and fasted for him, and he recovered.  He was remarkably recovered, but there were still obvious new quirks that reminded us that he had not got back everything he had lost.  His wife spent a lot of time with him, helping in his recovery, the therapy, and just enduring the times when he wasn’t quite himself.  This is where we became more similar as a couple than we had before.  She had frustrations when her husband wasn’t quite himself like I did, and frustrations when her husband thought he could do things that he used to do before when she would have to remind him that it just wasn’t possible now, like I do sometimes too.  In this way we commiserated and supported each other.

Then her husband got cancer.  It must have been quite a blow to have recovered from one near death experience only to face another.

Her husband was one of My Hobbit’s dearest friends.  They traded hats like some kids trade CCG’s.

I asked My Hobbit how he was doing, because I could tell he was feeling low after the Memorial for this dear friend, and he  said: “I am doing ok.  I didn’t cry.”  And I said: “I cried for you.”  And I think I did.

I am very sober this evening.  I am glad that the challenges we have at our house have given us an opportunity to be so close and spend so much time together, even if it presents other challenges (like financial challenges) that are difficult to navigate. I am glad to have My Hobbit, for as long as I have him, and now I am even glad for the challenges that have brought us so low financially.  I get to be with him, my eternal companion, much more often than I would be if I worked.  I think, after the Memorial today, that I appreciate that much more than I ever have before.

Cats and Deaf Men

Discovery of the day: Squirt bottles work great on cats and deaf men.

When I’m outside and I need help, it’s not just a simple matter of waving in my window to get my husband’s attention.  With his RP/Ushers Syndrome, he can’t see me, and since he’s deaf, he can’t hear me.  I had a squirt bottle on my window (which was open) for my orchids, which I decided to try in a stream to get my Hobbit’s attention to come out and help me finish cleaning up the pool pump.  I gave him a little squirt (it barely reached him) and he came outside to help me!  It works!

Houston, We have Liftoff!

Sam got his new CI all put together, programmed and processed!

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I wanted to make sure he didn’t think this was going to solve all communication problems, so I told him very seriously:  “We’re always gonna have communication problems because… you’re a man.”

It never hurts to be honest about important things like this ;)

Tasks for the New Year

Hobbit: We got a lot of stuff on the Tax Return list
Hobbit: not sure we can do it all
Hobbit: Tax Return
* Pay Credit Cards
* Pay Ticket
* Fix Plumbing
* Cut Pool Tree
* Ninja Blender
* Kitty Purse
* Boots
Hobbit: you were suggesting something else today
Hobbit: and I forgot what it was
Swampfaye: we’ll have to consolodate… let’s get a ninja kitty purse that can cut trees
Hobbit: That would be pretty awesome
Hobbit: chainsaw boots
Swampfaye: get magic plumbing boots
Swampfaye: the ninja purse can take care of the tree

Ghosts of Christmas past. (Guest Post by My Hobbit)

I will always remember this year’s Christmas. Thanks to the generosity of friends, family, and strangers, we had a better Christmas than I had any reason to expect. We were able to raise enough money through donations for the 20% co-pay coverage for a Nucleus 6 cochlear implant. It arrived on Christmas Eve. It came by FedEx, though I like to pretend it was delivered by sleigh and reindeer.

What’s more, I was able to get another pair of good quality sunglasses thanks to friends in our ward who got us gift cards for Christmas. They are Veza sunglasses, which are only sold at Sam’s Club. I really like the Veza sunglasses because they are incredibly strong and sturdy. Whenever I can scrounge up the money I look forward to adding another pair to my collection. I have three pairs now, and if I don’t lose any of them they should last a lifetime. They’re not a well-known brand, but that just makes them even more special. I feel like I know a secret that most people don’t know.

I don’t want much in the way of luxuries. I like sturdy boots, sturdy sunglasses, and a computer with a fast internet connection. I care more about whether something is durable than whether it is fashionable.

Anyway, what with a new CI processor and new sunglasses, it was a very deafblindie sort of Christmas. I’ve already set up an appointment with a specialist to have the CI assembled and mapped for the first time.

I look forward to switching from the big processor to a BTE (behind-the-ear) unit. It will be a lot more convenient. And fortunately I also have a backup CI that still works, even though it is obsolete. I am practically OCD about having backups: backup CIs, backup sunglasses, backup computers, backup boots, etc.

Anyway, it was a great Christmas. And thanks to everyone who contributed to the purchase of a new CI!

Happy Holidays,
+Sam